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Publications by Jane Kaye

Bi-Allelic Loss-Of-Function CACNA1B Mutations in Progressive Epilepsy-Dyskinesia

American Journal of Human Genetics
Genetics
2019English

Data Sharing Policy Design for Consortia: Challenges for Sustainability

Genome Medicine
Molecular MedicineGeneticsMolecular Biology
2014English

The Tension Between Data Sharing and the Protection of Privacy in Genomics Research

Annual Review of Genomics and Human Genetics
GeneticsMolecular Biology
2012English

Motivations for Data Sharing—views of Research Participants From Four European Countries: A DIRECT Study

European Journal of Human Genetics
Genetics
2019English

The Governance Structure for Data Access in the DIRECT Consortium: An Innovative Medicines Initiative (IMI) Project

Life Sciences, Society and Policy
ManagementMonitoringMolecular BiologyBiochemistryPhilosophyPolicyGeneticsLaw
2018English

Consent Forms in Genomics: The Difference Between Law and Practice

European Journal of Health Law
Health PolicyLaw
2011English

Making the Most of the Waiting Room: Electronic Patient Engagement, a Mixed Methods Study

Digital Health
Health Information ManagementHealth PolicyComputer Science ApplicationsHealth Informatics
2018English

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